That bit of the letter is confusing. What I was trying to get at is that my private insurance through the union wont pick up the cost of treatments beyond what Medicare authorizes: three times a week. I was trying to say that Medicare is the ESRD rule setter when it comes to what is acceptable care - that is why three hour treatments, three days a week is an acceptable standard for private payors too. I was able to follow up the letter with long phone calls and a face to face meeting during a lobbying trip to DC a couple weeks after I sent the letter - not that anything came of it but I do believe the staffer understood my point of view.
As far as writing a book - I only really write for fun when I’m traveling or at least away from home. Maybe once I can travel with a dialysis machine I’ll spend a couple months in a cabin in the woods on a lake with my dog and write the next great American novel.
I’m not sure what you mean here. Which report? What did you think of the President’s proposal to increase the private payor period to 60 months?