Hello to everyone on the board. I have been reading this board for several days now and by doing so I realize I have a lot of questions about a lot of things concerning home hemodialysis.
I am 39 yrs old, didn’t know I had kidney problems until a visit to the hospital occurred in May of 05, at which point I was immediately admitted and started dialysis. I am now trying to get into home hemo and am due to start training sometime soon with my wife being my helper.
I go to a Fresenius Clinic 3x a week. We have had no social worker in the clinic in the last 6 months, and just recently they scaled back the Doctor’s weekly rounds to once a month. I honestly feel like I can take better care of myself at home; in center I feel like I am just a patient number that has to dialyze.
I also feel like I am getting bad information from clinic staff on some of my questions; for example, I asked a nurse the other day what exactly the buttonhole technique was, and she told me she really didn’t know exactly what it was, but she thought it was something placed under the skin, like a button, and you used the same site each time, but that they didn’t do those in this area, and there was no real benefit from it. Reading this board, I get an entirely different opinion on it’s use and the benefits. I am more inclined to believe the people posting on this board, since it seems to be so widely used by the many posting here.
I have so many more questions, but will not bombard you with all of them right now since I have some time before the ball starts rolling. They have already come out and inspected the apartment and said that we would be able to do it here as long as the landlord would allow us to install a 220 outlet and a drain; the landlord has agreed to do this. The only problem now is that currently there is only one nurse available to do the training because the second nurse is going on maternity leave soon and will not be available.
I am really interested in finding out about NxStage and eventually switching over to that, but first things first and right now that is to get me home doing treatments and then we can go from there.