[Katrina Hurricane] Emergency Dialysis Notices

Those of you keeping tabs on Katrina Hurricane disaster and have family, friend or know someone in need of dialysis help might want to take look at the list at RenalWeb…

http://www.renalweb.com/cgi-local/ubb/ultimatebb.cgi?ubb=get_topic&f=15&t=000599

P.S. This forum is acting up, it’s kinda buggy…I started this new thread and other people’s threads are showing up in here…LOL

Hi y’all,

Gus, thanks for the Katrina post. I’m not sure why we’re getting mixed threads–we had to take the message boards off-line for several hours today because they’d been hacked (again), and they’re back up, but obviously not quite right yet. I’ll tell our web manager and see if he can fix that.

Hacked, ah…I think if the boards didn’t allow FFA then security would be tighter…

On the other hand, the creators of this board constantly update their code to prevent vulnerabilties and exploits from happening…

You also might wanna refer your web manager to
http://www.tuxrules.com/penguin/

They provide custom updates versions of this board along with the addons such as the attachment mod used on this board…

The latest is 2.0.17

Also want to point out that major support organizations need our support…such organizations like…

Salvation Army
http://www.salvationarmyusa.org/USNSAHome.htm

Red Cross

These are huge organizations that have been around for years and recieve their support from the people…if you think a few dollars doesn’t make a difference, but it does…

There are many many people suffering down there and the elderly, ill, and children are those important at this moment and hope some of you reading this to send what you can. Our generosity and compassion in helping in such situations as these is very important.

There are a number of national organizations that are taking donations of money, food, and time. The dialysis corporations are dialyzing each others’ patients day and night. Staff from others areas are being sent to the area to work on equipment and/or do patient care. Here’s a link to a fact sheet on the CMS website about what CMS is doing (includes information about payment for dialysis).
www.cms.hhs.gov/hki/hurricane_fact_sheet.pdf

If you want to help others with kidney disease, some kidney organizations are raising money to help them:

Staff working with the ESRD program of the Centers for Medicare and Medicaid Services are having daily teleconference calls (even over this holiday weekend) to brainstorm ways to help people with kidney disease.

As a long-time renal social worker, I hope that patients and clinic administrators will recognize that dialysis and transplant social workers are work in dialysis and transplant programs work in clinics to help people cope with kidney disease, set future goals, and access resources they might need. Every dialysis clinic is supposed to have a social worker with an masters degree in social work. The MSW should have specialized training in clinical social work. This means dialysis and transplant social workers could be working in mental health centers counseling if they hadn’t chosen this setting to work in. Incidentally, when people talk about “social workers” many people think “welfare worker” or “financial caseworker.” However, MSWs provide the most mental health services in the U.S. Unfortunately over the years social workers (especially those working in dialysis) have been relegated to pushing papers instead of spending time with patnets. I am appalled when I hear that patients rarely see their social worker or that they talk with their social worker about coping with illness, grief and loss, relationship issues, fear of death, conflict management, or rehabilitation goal setting.

Social workers should have a significant role in helping patients regain the hope, strength, and will to put their lives back together over the following days, weeks, months, and even years. I hope that patients will demand that clinics use their social workers for their intended purpose in dialysis. This crisis offers an opportunity to allow MSWs to get back to doing what we were trained to do.

A recap on this situation…

American Kidney Fund’s Grants Helping Dialysis Patients Who Survived Katrina
19 Sep 2005

Dialysis patients from the Gulf Coast region are receiving emergency financial assistance from the American Kidney Fund’s Disaster Relief Program.

The grants are helping patients pay for essentials such as transportation to treatment, replacement of lost medications, food and shelter assistance and replacement of household necessities.

“Many of these patients lost everything in the disaster, and thanks to the generosity of contributors who have responded to our call for donations, we will be able to help these patients, both now and in the coming months,” said Don Roy, Interim Executive Director of the American Kidney Fund.

The Fund has received generous contributions for disaster relief from many individuals around the nation, as well as from Amgen and the American Society of Nephrology.

The Fund is providing block grants to dialysis clinics. Social workers in those clinics are assessing patients’ individual situations and allocating funds to those in greatest need.

So far, the Fund has sent grants to dialysis clinics in Louisiana, Mississippi, Georgia, Arkansas and Texas. New requests are coming in daily. When a social worker contacts the Fund for emergency assistance, the Fund works to review and approve the request quickly and then sends a check via overnight delivery. All grant requests are processed within 24 hours.

In addition, Genzyme has donated Renagel to the Fund. The Fund is distributing this medication to patients who lost their medications in the disaster. Renagel helps dialysis patients control the phosphorus levels in their blood.

“On behalf of our evacuees, thank you so much for your prompt attention to their needs,” a social worker in Arkansas wrote to the Fund last week. “There are many sad stories and so much loss, it is hard to fathom. We appreciate your generosity and will put this money to the best possible use for our patients.”

The grant application process is simple. Social workers or dialysis centers with patients in need of emergency assistance may call the Fund’s Patient Services Department at 800.638.8299 or visit http://www.kidneyfund.org for information on how to apply.

Anyone wishing to contribute to disaster relief for dialysis patients may visit http://www.kidneyfund.org to make an online contribution. In addition, contributions are accepted via telephone at 800.638.8299. Checks may be mailed to American Kidney Fund, 6110 Executive Boulevard, Suite 1010, Rockville, MD 20852. Please indicate in the memo line that the contribution is for disaster relief.

In addition to distributing grants for patients, the Fund has given money and logistical support to Dr. Paul Miller, who opened a central warehouse for dialysis materials and supplies that a group of volunteer drivers are dispersing throughout the state of Louisiana.

The Fund’s website, http://www.kidneyfund.org, contains a comprehensive listing of disaster relief resources, including links to the many renal organizations that are offering assistance to patients.

The Fund has long delivered support to patients affected by catastrophic events. The Fund provided grants to dialysis centers in response to major hurricanes; the September 11 attack on the Twin Towers; Mississippi River flooding in the Midwest; and the Northridge (Calif.) earthquake, among others. Founded in 1971, the American Kidney Fund is the nation’s #1 source of financial assistance to needy kidney patients.

Ninety-five cents of every dollar the American Kidney Fund spends goes directly to programs and services for kidney patients. The American Kidney Fund has been named a Gold Star Charity by Forbes Magazine, one of America’s Best Charities by Reader’s Digest, and has received Charity Navigator’s highest four-star rating for the past five years in a row. Visit http://www.kidneyfund.org for more information.

Tamara Ruggiero,
Director of Communications
American Kidney Fund
6110 Executive Blvd., Suite 1010
Rockville, MD 20852
truggiero@kidneyfund.org
Direct Dial 301.984.6657
Toll Free 1.800.638.8299
Español 1.866.300.2900
Fax Line 301.881.0898
Donate Your Vehicle: 1.888.638.1171
Visit the Fund at http://www.kidneyfund.org

The American Kidney Fund is the USA’s leading source of direct financial assistance to kidney patients. The Fund has been named a Gold Star Charity by Forbes Magazine, one of America’s Best Charities by Reader’s Digest, and has earned top ratings from Charity Navigator and the American Institute of Philanthropy.

National Kidney Foundation Expands Gulf Coast Kidney
Patients Assistance Program
New York, NY
September 8, 2005

September 8, 2005 (New York, NY)-- The National Kidney Foundation (NKF) has announced its leadership structure for meeting intermediate term needs and for assistance to kidney patients displaced by Hurricane Katrina. The Foundation’s focus is on helping dialysis patients maintain access to their life-saving treatment and assisting transplant recipients and chronic kidney disease patients with their special needs.

John Davis, NKF’s Chief Executive Officer, announced the selection of a leader to head the foundation’s Assistance Task Force, “I am very pleased that one of the National Kidney Foundation’s veteran executives has agreed to lead our Gulf Coast Assistance Task Force, which was established during this past week. Preston A. (Tony) Englert, Jr., the CEO of our National Capital area Affiliate and a native of Louisiana, will direct our efforts to assist patients with the crisis they face in their lives and in their kidney disease treatment,” says Davis.

“Englert’s immediate challenge is to gather information on the status of patients and the assistance they are receiving from Affiliates. He will then coordinate with other groups to meet patient needs without duplicating efforts. Tony will travel to the region next week to personally direct the services that can be offered by the NKF directly or through Affiliates,” continues Davis.

The Task Force will coordinate the funds being contributed by the public and corporate donors who seek to support the specific needs of kidney patients through the National Kidney Foundation Patients Hurricane Relief Fund.

To contribute to the foundation’s Hurricane Relief Fund, click here to donate or mail checks to the National Kidney Foundation Patients Hurricane Relief Fund, 30 E. 33rd Street, New York, NY 10016. One hundred percent of funds contributed to the Relief Fund will go directly towards patient assistance.

“We are very gratified by the terrific cooperation we have seen by everyone involved in helping our patients deal with this disaster. National Kidney Foundation Affiliates, other kidney organizations, the large dialysis organizations and the kidney related industries have all worked hard and closely together on behalf of the people who are suffering,” says Davis.

“We are proud and grateful that our Louisiana Affiliate has relocated to Baton Rouge and is working tirelessly to help patients even though the staff has suffered great losses themselves,” continues Davis.

The National Kidney Foundation is dedicated to preventing kidney and urinary tract diseases, improving the health and well-being of individuals and families affected by these diseases and increasing the availability of all organs for transplantation.

American Association of Kidney Patients disaster relief fund to help Katrina victims
13 Sep 2005

The American Association of Kidney Patients (AAKP) announced the development of the AAKP Disaster Relief Fund to aid kidney disease patients affected by Hurricane Katrina.

AAKP is accepting monetary donations that will go directly to kidney disease patients in the disaster area. It is estimated that more than 4,000 dialysis patients were affected by Hurricane Katrina. Dialysis patients require dialysis treatments - usually several times a week - to remove toxins from the body.

“As a Mississippi resident, I have seen first hand the devastation brought on by Hurricane Katrina,” said AAKP President Brenda Dyson. “We are currently working to provide life-saving dialysis to these patients; however, generous contributions are necessary to maintain dialysis treatment by providing proper medical supplies and medications that keep patients alive.” Monetary donations can be made via check or credit card. All checks must say Disaster Relief Fund in the memo area. To donate via credit card, visit the Hurricane Relief link at http://www.aakp.org or call the AAKP National Office at (800) 749-2257.

AAKP is the voluntary, patient organization, which for more than 35 years, has been dedicated to improving the lives of fellow kidney patients and their families by helping them deal with the physical, emotional and social impact of kidney disease. The programs offered by AAKP inform and inspire patients and their families to better understand their condition, adjust more readily to their circumstances and assume more normal, productive lives in their communities.