i am still having a hard time with liquid at home 4 nights a week just looking for subjections. what are things your doing? maybe more time i average about 2-3 kilos a day so i am nomally at 6 by the time i get on. and i still havent made it to the bed just not working out.
You should discuss this with your nurse. Having to take off 6 litres seems like a lot to me. Even with daily nocturnal, it should not be much more than 3 litres, and really, 2 is better in case you have to skip a treatment that night or day due to an unforeseen technical problem. If you are only dialyzing every other day or night, rather than daily, I don’t see how you can do that without limiting your fluid intake during the day.
I don’t remember if you’ve done in-centre hemo before home, but unless you’re doing dialysis daily, you can’t really drink more than about a litre to a litre and a half per day (a litre of water weighs exactly 1 kilogram), plus whatever amount you still urinate per day. The no fluid limit idea comes from doing the dialysis daily, not from just the fact that you’re doing it at home. But again, don’t take my word for it, talk to your nurse. If you’re that thirsty, you might be eating too much salt. Also, don’t forget that what you’re wearing when you weight yourself makes a big difference. For example, wearing pyjamas versus street clothes can change weight by as much as 1.5 kilos, so, you have to account for that.
Even with long nocturnal treatments, you still have to work things out so that you don’t have to take off much more than 400ml/hour, and certainly not more than 500 ml/hour. Under 400 is best.
Pierre
Talk also with your dietitian. Dietitians can offer practical tips to help you lmit your fluid intake. There are some resources to help with this as well.
– Life Options has a fact sheet on fluids at
– Life Options has tips for patients, including some fluid tips at
http://www.lifeoptions.org/stories/stories.php
– American Association of Kidney Patients has an article on fluid control at
http://www.aakp.org/AAKP/RenalifeArt/2005/fluidcontrol.htm
– iKidney article on sodium and thirst at
http://www.ikidney.com/iKidney/Community/Pro2Pro/Dietitians/SodiumNotFluidControlsInterdialyticWeightGain.htm
If you’re diabetic, having a high blood sugar can make you thirsty. Keeping your blood sugar under control can help keep your thirst under control too.
Ask your doctor if any of your medications you’re taking have the side effect of increasing thirst. This is common with blood pressure medicines, water pills, and medicines to control your mood. Here’s an article on medications and thirst and tips to control thirst.
http://www.findarticles.com/p/articles/mi_qa3689/is_200404/ai_n9402145
It’s important to keep your fluid weight gains within reasonable limits. If you gain too much between dialysis treatments, your heart can get enlarged and this weakens your heart muscle. A weak heart doesn’t pump blood very well and will fail sooner than if you keep your heart strong.
I’m surprised you can even breathe with 6 extra kilos on you. I start feeling short of breath with only 3, plus, I would be guaranteed to have terrible cramps if I had to take off 6 kilos in one treatment.
Pierre