Hi,My husband is doing nocturnal dialysis here in Australia. (nsw) He does every second night because that is all the government will allow.
He started dialysis back in 1980 and recieved a transplant in '85 that lasted 17 years. I have been with since 1980. I have to say back then, because he was young was the best thing to have a transplant. He took his meds regularly, never missed one. and we had 2 children, now grown up.
He has since been back on dialysis for the past 3 years. He wants another transplant. He has however, become a high risk transplant risk simply because he has heart disease ( he had a quad bypass) he also has hepC, with some liver damage. But, he still wants a transplant because of the freedom aspect.
We have recently been told that there is another list here. It is a list for those who have hepC and are happy to receive a kidney from a hep C donor. ( cadavier). We haven’t yet said yes that he is happy to go on this list, but I am researching for him, and looking for information…
There are anumber of options available to him. He could wait on the regular list for a transplant which could take years and years.
He could accept a kidney from a hepC donor. ( they are saying to us when you have hepC, it hasn’t been known to cause the liver disease to progress any quicker when recieving a hep C +donor kidney.
Or he could stay on dialysis and not go on a list.
I know it is easy for me to say, I actually want him to stay on dialysis.
I know that sounds mean, but it is only because that is the devil we know.
He however has different ideas. he is a very positive person and is willing to take the risk.
It is his body and in the end I have to respect his wishes and I will stand by him no matter what he decides. I just like to be very well informed of all the options.
So, I was wondering has anyone heard of anyone having a kidney transplant from a hepC donor either here in Australia or overseas?
I hope I made sense.
Queenie