Setting question

[Troy]

I have a question for the nxstage users.

What do you set your systems for
blood rate, volume, filtration, etc…?

They never did give me any set numbers. just what the started me out on. just enough to remove the fkuid the is used .3 liters.

[Gus]

@Troy

I have a question for the nxstage users.

What do you set your systems for
blood rate, volume, filtration, etc…?

They never did give me any set numbers. just what the started me out on. just enough to remove the fkuid the is used .3 liters.

Troy, whats your filtration faction? What’s the FF set at for you? How many liters of dialysate do you use? And how many hours do you do?

I am kinda daunted that they didn’t give you or prepare you well on parameters…are you sure about that?

Troy, did they give you the NxStage manual? That book has information on how to adjust the parameters, go over that book…it has all the information you need.

[Troy]

Maybe I did not ask the question correctly.

Troy, whats your filtration faction? What’s the FF set at for you? How many liters of dialysate do you use? And how many hours do you do?

Frist screen (rate)
The therapy flow rate is 8.6 L/hr.
The ultrafiltration rate is at 0.15 L/hr…
My blood flow rate is 420-430 ml/ hr.

Second screen (volume)
I use 4, 4500 ml. bags, but machine is set at 22.
The ultrafiltration volume is 0.3 L/hr

My FF is 35.

I am 5’ 8" tall
230± wet, no dry wheight established yet.

As far as time the treatment vary 2.75 hrs. to 3.5 hrs. on avg. at these settings.

My question again is what are your settings?
Are these to low/high?
What if I need/want to take extra weight off?
How do I do it properly?safe?

I am kinda daunted that they didn’t give you or prepare you well on parameters…are you sure about that?

Yes, they were not very informative.
And yes they did give me a book. I have read it twice.
But I am looking for what, what the did not tell me, is what my avg. settings should be.

[Gus]

@Troy

Maybe I did not ask the question correctly.

Troy, whats your filtration faction? What’s the FF set at for you? How many liters of dialysate do you use? And how many hours do you do?

Frist screen (rate)
The therapy flow rate is 8.6 L/hr.

Mine is at 5.7

The ultrafiltration rate is at 0.15 L/hr…

Mine ranges from 0.47 - 0.79

My blood flow rate is 420-430 ml/ hr.

Mine is at 420

Second screen (volume)
I use 4, 4500 ml. bags, but machine is set at 22.

I use 3 bags and have it set at 15, so I guess yours is at 22 to make sure all the fluid is used and non is left?

The ultrafiltration volume is 0.3 L/hr

Mine ranges from .8 - 1.2, depending how much fluid I had…yours is quite low, do you urinate still?

My FF is 35.

Mine is 30

I am 5’ 8" tall
230± wet, no dry wheight established yet.

As far as time the treatment vary 2.75 hrs. to 3.5 hrs. on avg. at these settings.

They seem normal for a guy your size, how’s your labs? Are you labs looking great?

Are these to low/high?

They look normal for a guy your size, but how do you feel and how are your labs?..what about blood pressure?

What if I need/want to take extra weight off?
How do I do it properly?safe?

[b]
You can dialyze longer by reducing Dialysate rate, for example, if you use 8.6L/Hr. …you can reduce as much as you want but you need to figure out how much lower you can go by experimenting…so from 8.6 try 8.0 …also, UFR can be adjusted based on how much you gained…for example here’s the formula…

Current weight(-)Dry weight(=)fluidvolume to remove(+)0.3 rinseback(devided)3.5hours(+)0.20 kg of dialysate(=) rate of fluid to remove each hour…

Note: the 3.5 and 0.20 is to reflect what you use. For others is different…[/b]

I am kinda daunted that they didn’t give you or prepare you well on parameters…are you sure about that?

Yes, they were not very informative.
And yes they did give me a book. I have read it twice.
But I am looking for what, what the did not tell me, is what my avg. settings should be.

Just keep in mind how labs are and how your blood pressure is and whether you have edema…

[Troy]

Hey Gus,

I need to make a correction. I use 5 bags. I just noticed that I put 4, that would be a little hard to do.

Yes, I still have output. It has not changed from before treatment.

Labs, well their all over the place, some to high some to low.
I draw first labs at home next Friday.

BP,They thought that I should have been dead 4 years ago.The nurse freaked out and sent me to the real hospital via ambulance. Now they are around 130/73 w/p of 70± on a good day, and lots of drugs.

As far as water retention very light, if any. No swelling in ankles at all. Very little in hands and face. Can still use one hand to get rings off.
Let me put it to you like this. If we meet you would never no that this was going on. I am, a typical, according to Dr. Vu.

I take it that you are younger and smaller than me.
Do you urinate at all?
I noticed that you have been doing this for quite a while.
Thanks for the info you have been very helpful during this time for me.
I hate to say it but I’m glad your here tp help.

[Gus]

@Troy

Hey Gus,

I need to make a correction. I use 5 bags. I just noticed that I put 4, that would be a little hard to do.

No problem…

Yes, I still have output. It has not changed from before treatment.

That’s quite good really…means you don’t even need to take much fluid out, so no wonder your numbers are low

Labs, well their all over the place, some to high some to low.
I draw first labs at home next Friday.

Of course, that’s the way it is for most of us, it just fluctuates…

BP,They thought that I should have been dead 4 years ago.The nurse freaked out and sent me to the real hospital via ambulance. Now they are around 130/73 w/p of 70± on a good day, and lots of drugs.

Wow, you mean you take alot of blood pressure pills? If so, I assure you they will be reduced after a few months of doing daily-short…I usew to have high blood pressure before starting daily-short…after 3 months it normalized…

As far as water retention very light, if any. No swelling in ankles at all. Very little in hands and face. Can still use one hand to get rings off.
Let me put it to you like this. If we meet you would never no that this was going on. I am, a typical, according to Dr. Vu.

That’s very good!

I take it that you are younger and smaller than me.
Do you urinate at all?

Yup, am a smaller guy here and my kidneys are gone, somewhere in heaven I guess…they were taken out at age 7…so no raining here…har har har

I noticed that you have been doing this for quite a while.

Indeed, since 1978…but a little over a year with NxStage Sytem One…

Thanks for the info you have been very helpful during this time for me.
I hate to say it but I’m glad your here tp help.

Certainly, that’s what we’re here for!

[Troy]

Gus,
I just went to your site. I really liked it. A lot of information. I regestered also.

[Gus]

@Troy

Gus,
I just went to your site. I really liked it. A lot of information. I regestered also.

Good Deal! You found your way to my secret hideout! :lol:

Now that your registered there you can also submit your own news articles or reports which will be shown in the frontpage! There’s also an image gallery where you can submit screenshots of your home dialysis setup, you don’t have to be in the pic, unless you want the whole world know who you are… :roll: