About the Ask Our Experts category

#1

If you need advice from a professional, ask here. Please be sure to SEARCH the forums first. Your question may have been answered before. NOTE: We can try to help you understand what you have been told by your care team. We can also help you sort out what to ask your care team. This forum is NOT a substitute for your own healthcare. No one can diagnose you on the Internet, and we do not know your health history.

#2

My husband has been on home dialysis (PD) for about 1 1/2 years. We have always been very meticulous with cleanliness. (He is a retired dentist). He presented problems in December with ouflow. There was no pain, no cloudy bags, nothing to show any infection. They ran tests and the results came back showing peritonitis. He had the old catheter removed and after a period of four months a new one placed in. We waited four weeks for healing to occur . He was receiving hemo in the interim. Surgeon gave him 80% success for PD to continue even though he does have adhesions. We started the flushes a week after the new catheter was reinserted, per PD clinic and the first two went well. By the third flush, we noticed decreased fluid output and the 4th and 5th flushes continued to deteriorate. We are returning to the surgeon to have the catheter scoped but they seem to think scoping is our only option before full time hemo. We want to make sure we explore EVERY avenue before we give up on PD. IS there anything else we can be doing? Is there anywhere else we can go for further suggestions, advice, etc. Transplantation is not an option as my husband has been in remission 11 years for CLL. I am a double kidney transplant patient so we are well versed in transplantation issues. Please help!!!

#3

Hello
I’m not sure if this is something I can ask on here but I’m not sure where to go…
I’m a 44 year old female, I’m currently under the care of a renal specialist and after several tests I’ve been told I need to go on 12 months of antibiotics! I’m considering a second opinion!
I’ve had many years of gynae issues with many UTIs. I had a hysterectomy in Aug 2017 which resolved the underlying problem of adenomyosis. I had quite a lot of UTI’s when I was a child, it was looked into and nothing came of it! I had an u/s which showed enlarged left kidney, further tests showed a puj with chronic infection and inflammation and renal scarring. A renogram showed 30% function in the left kidney. The specialist went in under GA yesterday, he found the blockage now clear but noted my bladder was twice the size it should be, nothing further was said about the bladder or any link noted between the kidney and bladder. The urologist said he was confused by all the results and thinks 12 months of antibiotics will help! I’m not happy with this as a quick google search links an enlarged bladder to problems with kidney function! Any advice/help would be very much appreciated. I feel extremely tired most of the time and have symptoms of UTIs permanently so this is really affecting my quality of life. Thanks in advance

#4

I’m having trouble with “low flow volume” on my BAXTER machine, they have sent me a new one but same issue, I have tried sleeping on my back, my right side, my left side but nothing changes, I still have to sit up in bed and let it finish the drain cycle, this is happening on every cycle and I am getting very little sleep at night. I have lowered the machine 6 inches below my abdomen and also raised it 6 inches above me. Can someone please help me with this?

#5

Does this happen intermittently or every night? I assume you’ve talked with your home training nurse. Have you talked with Baxter’s clinical nurse? Could you be constipated? Could fibrin be blocking some of the holes in the catheter? Could your catheter have moved away from the lowest point in your peritoneal cavity? Someone on this thread started in 2007 suggested that a low battery could produce this alarm. Seems like your nurse, the Baxter nurse, or their technical support could help if you know for sure aren’t constipated, the catheter is not plugged with fibrin or it’s hasn’t moved out of the correct location. Here’s the other thread. NOTE: the link to the job aid for Baxter that I posted doesn’t seem to work and I haven’t been able to locate it yet.

#6

yes this is happening every night, I have talked to my nurse and she suggested I call tech support at baxter, they sent new machine but no change, I didn’t see any fibrin but nurse told me to try using the stuff you inject into the bags to see if it changed anything, but still no change. I’m not constipated, the only other thing I haven’t checked on is to see if the catheter is in correct location.