Hi and thanks everyone. I have a couple questions about how to navigate an unusual situation – are there any steps or tips you have for a dialysis patient who will be doing a multi-week stay in the US?
My elderly parent used to live in the US, now lives in India, and is planning on making an extended visit to the US. She has kidney failure and so she started peritoneal dialysis earlier this year, in India, and she will need to continue treatment while visiting the US. Because of past work history she qualifies for Medicare, so she plans to sign up for Medicare, including Part B (Medical coverage) and Part D (prescription drug coverage).
My family is trying to talk with local facilities (in the US, in the city she’ll be visiting) that offer PD, so we can go get a tour, figure out pricing, and do things like that. It seems like her situation is pretty unusual – the local facilities are used to people in the area starting PD, and maybe they’re used to a travelling patient saying “could I please tour your facility because I might start using it,” but it’s a little harder because my parent is not available in person for an intake meeting.
I have 2 main questions:
Is there some specific phrasing or paperwork we should make sure to get from her Indian doctors when doing an international transfer of a current PD patient? Should we preemptively get some kind of general referral or letter from her existing nephrologist in India to send them as part of the initial conversation? Will they need it notarized or something like that?
Is there a set of steps we should be following in sequence? For example, will it be easier to coordinate with the local centers after she signs up for Medicare? Is there a way to connect with a local dialysis social worker before choosing a specific center, or does each center have its own social workers?
I also welcome any other advice from people who have dealt with anything similar. Thanks for your advice!