I had just returned to center to give my wife and partner a break after about 13 years at home.
I had started NxStage in December 2006 after 3 years on the Aksys PHD (*now my ‘dream machine’)
After 6 months on the NxStage, my health went downhill very fast…I didn’t know what was going on …we suspected
everything in the world 30 years of dialysis, deterioration from juvenile diabetes, pain around the clock, joints, ribs, whatever I had hurt…
So after about 2 weeks in Center I started noticing less pain…believe me I was not the only one…my wife knew right away that I was feeling better…‘the bear had left the building’ and crankiness was in remission.
Now after almost 3 months I’m feeling better than I have in the last 3+ years. Obviously it’s not because I went from 6 treatments a week to 3. The only other difference is the bicarb which I had always been on before NxStage.
I’m not complaining about NxStage…I have really liked the ease of my home program and the daily dialysis all this time.
It seems my body could not tolerate the Lactate dialysate.
Anybody out there have anything similar?
I’m going to try to find a bicarb system I can ‘use’ at home with a septic system and return when I can to freedom.