I am Ray and hve been a member of this site on a different computer ans e-mail address.
I have been on dialysis since mid May of 2006. I started home hemo on June 1st 2007 and would not go back to in-center for treatment period. My kidney failure is due to 36 years of diabetes. I was on the kidney/pancreas transplant list until my yearly stress test last september showed I had a heart attack. After a quadruple bypass surgery, November 6, 2009, my right mid arm a/v fistulla failed. The next day I had a permacath placed in the left chest area. This cath ran fine and on January 4th 2010 I had a new fistulla placed in my left wrist. I have since had 3 procedures to help develope fistulla including rerouting it. My dialysis team ans I have abandoned the fistulla because it would not mature. On July 7th I had to have my chest catheter removed due to infection and had a new one placed in the left side of my chest. We had some difficulty running the cath. and could usually run it backwards and get a 500 blood flow. July 30th was my last full dialysis treatment due to the infection that apparently never went away. I was admitted to the hospital July 31st. aaaaaaaathey pulled the infected catheter 2 days later and started me on several iv antibiotics. On the 9th day of my hospital stay the Infection specialist okayed placement of another chest cath. It was placed Monday August 9th and i was sent home to dialize, along with orders to go to a local hospital for iv antibiotics every 48 hours til September 1st. As soon as I got home we set up my nxstage cycler and got ready to run dialysis. After hooking up to the machine my blood never even reached the cycler because the arterial pressure was over 400. We tried 6 more time over the next couple of days with the same results. On Sunday the 15th of August we were able to run for 1hour 14 minutes at a blood flow of 150 until my blood clotted. I will say that during this week at home my dialysis nurse was trying to get me into the hospital for a catheter replacement , but theey would not return his calls. Monday the 16th I went to my nephrologist office and he got on the phone and literally tore into the hospital staff who told me to get there right away to fix the problem. I had a replacement catheter in the same place within 2 hours and it was filled with alcavia(?) We went home and set up the cycler to run. I am only getting a 310 blood flow with this new catheter even after 2 treatments. My wife thins the diameter of cath tubes into chest are smaller than my earlier catheters. I am used to running dialysis for 2 hours and 20 minutes with a 500 blood flow. Currently My dialysis time is almost four hours.
I need to know if it just takes several treatments to get catheter flowing better or if the smaller diameter cath will only run in the 300+ ml/min blood flows. Does anyone out there have experience with this? My Nephrologist said Thank God you still put out 1000 liters of urine a day. I am scheduled to have a new midarm fistulla placed in left arm on August 27th (god willing and infection gone) Someone please share your knowledge about this problem with me. I am feeling very ill and anxiouse and would appreciate any advice and or prayers.