I’m relatively new to this forum and am glad to have found it . I’m a caregiver to my husband who was recently diagnosed with ESRD. He is on PD and still getting used to it. He has been on short-term disability and is planning to return to work soon.
Currently my husband is at a dialysis facility where it’s often difficult to contact the PD nurse and other personnel because they are either stationed on multiple locations or work only part-time. Other than the once a month blood draw and the MD/RN clinics, all communication to the PD and MD is done via text messages. The PD nurse would like to be contacted during business hours; otherwise, we may contact her only in an “emergency”. This last one gets me because what is an emergency to us may not be an “emergency” to her and not necessarily on her business hours!! Let me also add that we decided to go with this center originally because at the time, my husband was in hospital on an emergency and we did not have time to prepare for this. Case worker at hospital would only discharge if there was a center assigned to us and we were led to believe by the nephrologist(who is also the medical director and co-owner of the dialysis clinic)that this was the only center that offered PD, which turned out not be true as we now know.
I have looked for and found another dialysis facility that offers PD – one with excellent doctors and nurses whom I feel comfortable with. The question I have is if we do change dialysis center, how would the change affect my husband’s current standing on the transplant wait list. Also how does the change affect insurance and Medicare? Currently we have EHP and Medicare. The facility we would like to transfer to is in-network so I should not have any problems switching, nor do I anticipate any issues regarding the carry over treatment to the new place. We would like to know if insurance/Medicare coverage is on a monthly or daily basis? Are we allowed to change dialysis center anytime or are there restrictions on what period the change should take place? Any information you can provide will be greatly appreciated.