Hi all, I was wondering how many of you doing home dialysis have an online blog? If not, are you interested in starting one? If so, there are many free blog services over the net, here’s a few to name…
After you get your blog up and running send me a link to your blog’s address and I will post a link on my sites Home Dialysis Blog list at
http://www.dailyhemo.org/2/e107_plugins/links_page/links.php?cat.5
“Le the world know about you!”
Gus, I don’t have a home haemo blog , because, as yet I am not on home haemo. An long term fellow patient of mine (I was gonna say old, but she’s about 25 & I’m 29) is doing home haemo and is an inspiration to me.
I do how ever have a Live Journal Blog, of which a number of my entries are posted in the community damned_dialysis.
I think if I do go onto home haemo that may be a good idea!
My blog may be found at:
J
Hey, thanks lfor sharing that with us! I read through your blog a bit and I see you have great urge to live! You have some hefty energy there 
…I think home dialysis will make you even stronger!!
What about your fellow friend? Is she online as well? have she a blog as well?
Not to my knowledge Gus, she’s just finished University, the thing we have in common is that we both grew up under the care of the paediatric department at Guy’s Hospital in London.
I would call mine a dialysis travel blog rather than a home dialsyis blog. Check out a google blog search for “dialysis”:
http://blogsearch.google.com/blogsearch?hl=en&q=dialysis&btnG=Search+Blogs
There are number of people blogging that are on dialysis but not too many overtly blogging about home hemo. Here are two that I stop by on occasion:
http://www.tollidee.com/journal/
http://www.michaelfraase.com/
That’s true, but you are a home dialysis patient… 
…I know that tollidee blog site…been there a few times reading through it, but that michaelfraase has nothing regarding dialysis…
JW77@ That’s nice growing up close to people you’ve known for long time…I’ve been in that same position as well…a bit of sad memories for me as most of those people I knew have passed already. Sometimes I feel guilty that I am still here alive. I guess GOD knows out time.
Gus, I don’t want to dwell on the matter, but I lost 2 young female friends over the last 5 years,.
One of them was a close friend & coleague, who set up a group for supporting youn kidney patients in the UK.
Sadly she died at the age of 21…
If you want, however an example of the support friends & partners can offer to people…
During my acute case of illness last year, my best friend who then became my girfriend kept Kidneypatientguide, users updated of my progress.
The realtionship did not last although we are still close friends.
The point is whilst I was in hospital, suffering from meningitis, having my heart stop for 2 minutes…
As I went throught this, she was keeping everyone informed day by day.
The power of the internet & humanity can be unbelivable the thread on my progress got no less than 130 posts & over 29480 replies,!! I don’t want to boast!! I still can’t get over that number…!!
I can’t get over the amount of energy, prayers, healing energy if you like, that those people, most of whom I had never met.
I’m not quite sure if I’m even trying to make a point, such a thing is a humbling experience.
Gus, I don’t want to dwell on the matter, but I lost 2 young female friends over the last 5 years,.
One of them was a close friend & coleague, who set up a group for supporting youn kidney patients in the UK.
Sadly she died at the age of 21…
If you want, however an example of the support friends & partners can offer to people…
During my acute case of illness last year, my best friend who then became my girfriend kept Kidneypatientguide, users updated of my progress.
The realtionship did not last although we are still close friends.
The point is whilst I was in hospital, suffering from meningitis, having my heart stop for 2 minutes…
As I went throught this, she was keeping everyone informed day by day.
The power of the internet & humanity can be unbelivable the thread on my progress got no less than 130 posts & over 29480 replies,!! I don’t want to boast!! I still can’t get over that number…!!
I can’t get over the amount of energy, prayers, healing energy if you like, that those people, most of whom I had never met.
I’m not quite sure if I’m even trying to make a point, such a thing is a humbling experience.[/quote]
Its okay, we all go through this someday or another and I think its okay to talk about it. The only thing I can remember are the qualities of these people, not how they died but how they lived among us, the connection they had with us and the good times about them.
Prayers and supportm is indeed powerful and mysterious but it works! 
“Que?” er…oops 
stand by Gus…
That’s better…“Pollies” eh? :lol:
Continuing on the blog theme, I’ve uploaded a couple of photo’s of moi whilst on holiday,
Pictured are me & the unit staff, my parents & 1 brother, the mother of the girl who works in the hospital cafe (she does weekends to cover for her daughter!)!!
I can still remember the request for bocadillo jamon y queso y cafe cone leche!!
Hey nice pics and family there! You all look like you really enjoyed the trip…you don’t even look like a patient! How was the clinic experience? What type of machines they used there? Any other thoughts/tips for us patients who love to travel to that area?
Thanks for the compliment, as you probably noticed, I’m the short one in the middle on photo 1.
The clinic experience was a bit nervy, as I wasn’t sure I’d actually get a taxi to & from the unit.
Luckily they used the same machines as I’m used to at home, BBraun, so made things a little more familiar,
THe staff were fine & doing an AM shift whilst on holiday is always tiring, but it did mean the rest of today to chill out & have a siesta, which is what everyone does anyway. Most banks & a lot of shops close over lunch.
Thoughts & tips,
HMMMMm well mostly common sense, make sure your passports are up to date & you have a photocopy of them, AND your dialysis details.
You will need to get bloods/swabs done Hepatitis, MRSA swab & HIV tests
If they are all clear the unit will accept you.
Get as much info as you can.
Insurance, shop around & DO read the fine print! One insurance co would cover everything EXCEPT, my exisiting transplant.
Kind of pointless.
We got insurance through Tesco’s (The supermarket chain)
& booked through Freedom Travel.
Always try & learn a few words, esp phrases like,
I’ve got cramp, take me off now.
if you can!
As well as some of the local speech, which in Menorca is Spanish & Catalan)
Any more Q’s just ask.
J