Hello y’all. I haven’t been active here for awhile due some fairly serious health problems that landed me in the hospital for about 6 months. Seems like I’ve FINALLY recuperated. It was long and frustrating getting through this one, but I am back. At least for a while - I hope. Yeah!
I have a problem that I am hoping I can get some creative ideas from y’all to help me solve. First, unfortunately, I want to let it be known that I am one of the several PHD users that recently got burned by Aksys. Since they have decided to focus most of their resources on developing thier next generation PHD, they have pulled out of my area - I think they even pulled out of Texas entirely. I am not positive about that last statement, but I am pretty sure they did. Alas, I have decided to use the NxStage System One to continue doing my hemodialysis at home. After dialyzing at home for over a year now, they’d probably have to drag me, kicking and screaming, back to regular in-center txs.
I am currently in training on the System One, which should end this week. As of Saturday, I am planning on being a full-fledged “NxPat” (NxStage Patient - what do you think?).
Airline Travel with the System One:
As luck would have it, I am going to Kauai, HI for a well needed 2 week vacation from my “real” life here in Houston, TX (or, as I call it - Hellhole, Tx). Once I switched to the System One, I immediately thought: “Hey, I can dialyze with my NxStage machine in Kauai and not have to go in-center!” Wrong.
I’ve recently spent a lot of time reading all of the other travel stories on this forum (car, airline, cruise). There are two things that I found out that didn’t make me very excited about my trip: NxStage doesn’t ship “travel” dialysate to Hawaii, and airline travel with the System One is possible - but it’s a pretty big hassle.
I can deal with the fact that travelling with the System One is a hassle, but I can’t seem to get over the other problem - the fact that NxStage won’t ship dialysate to the Hawaiin islands (they are not part of the 48 contiguous US states). Now, that’s a really big problem for me, because I am going for a 2 week stay. How many lbs and boxes of dialysate would be needed for a full, 2-week vacation, you ask?
I would need to do 13 treatments while I am on my vacation. 13 treatments would require 13 boxes, each containing 20 liters of dialysate - which would total 572 pounds! I seriously doubt that Continental (the carrier we are flying on), would allow 13 boxes, each weighing 44lbs, and my System One, weighing around 100lbs in its travel case, to be checked as extra baggage at no charge (due to the disability regulations). I haven’t checked yet to be positive about that, but I really doubt they would allow it.
So I need to figure out a way to get all of that dialysate over to Kauai. I’ve been on vacation there before and had to dialyze in-center. It took half of my time away! I really, really want to be able to bring my System One with me this time, and dialyze in the comfort of the gorgeous house we rented.
I haven’t even tried to compare prices for shipping that much stuff over. I’m scared of what the cost is gonna be! I’m really hoping that someone can throw me an idea of a really cheap way for me to get all of that dialysate over to Kauai.