I am the mother of a 12 year old boy, who first went on PD at the age of 16 months. He has subsequently had two transplants and we are back on PD awaiting a third transplant.
While the days when he was first sick were long, I have never regretted one moment of the time he has been on either PD or hemodialysis. I gave birth to Luke at the age of 31. If I had had him 10 years earlier, he would not have survived. Dialysis has given my son a life.
Today, even with his PD cathether in, he made the 6th grade all star basketball team, has been a pitcher in the Little Leagues for years, was a goalie in soccer, and has had straight A's in every subject in every marking period. If I had never stuck with him, he would never have this wonderful life. He doesn't feel sick and doesn't act it, though in fact he really is! A parent's fears and worries are not the same as our kids. They want to live and play. With PD and hemodialysis, he has been able to do that.
And to boot, we are just about to nail the genetic disorder that has afflicted him and we have a medical response for it. How about that? If we had not hung on with dialysis for these past 11 years, we would never have given him a chance to be cured.
With medical advances and constant improvements in dialysis, life gets easier and more routine every year. It was much harder 11 years ago. I have seen medical literature on plastic artifical kidneys to be surgically inserted that no one would reject and I have seen articles that show dialysis run in something no larger than a ruler. Each year gets better and more hopeful.
Do not give up. Your son may be our country's future Olympian or NASA scientist. We need him. Please take care of him and give him a chance - dilaysis is a life sustaining treatment. I thank God every day that I lived in a time and a country where we had the technology to keep my son alive.