Intimacy Webinar Follow Up

#1

Hi y’all! I hope you were fortunate enough to join us for Robin Siegal’s talk about Intimacy and Home Dialysis. If not, we did record it and will edit and compress it so we can put it on the home page. In the meantime, we had some requests for the book titles and authors that were mentioned, so here’s some info. None of these are new, so you might think about looking in used bookstores (I’m including the Amazon link, too):
– The Complete Idiot’s Guide to Sensual Massage - Helen Hodgson - http://www.amazon.com/Complete-Idiot...6458849&sr=8-1
–The Ultimate Guide to Sex and Disability: For All of Us Who Live with Disabilities, Chronic Pain, and Illness - Miriam Kaufman, Cory Silverberg, Fran Odette. http://www.amazon.com/Complete-Idiot...6458849&sr=8-1
–The Dance of Intimacy - Harriet Lerner - http://www.amazon.com/Complete-Idiot...6458849&sr=8-1

I ran across this abstract in the course of working on a book chapter. It’s important to note that they mean standard in-center HD, when they compare PD to HD.

J Sex Med. 2008 Apr;5(4):872-7. Epub 2007 Nov 13.
Sexual dysfunction and associated risk factors in women with end-stage renal disease.

Kettaş E, Cayan F, Akbay E, Kiykim A, Cayan S.
Department of Urology, University of Mersin, School of Medicine, Mersin, Turkey.

INTRODUCTION: End-stage renal disease (ESRD) is a serious illness which has severe negative effects on patients’ lives and quality of life. AIMS: To prospectively compare sexual functions between the women with ESRD and healthy women, and also to investigate risk factors that may cause sexual dysfunction in women with ESRD. METHODS: The study included 249 women, and the women were divided into two groups: 131 women with ESRD and 118 healthy women as a control group. After obtaining demographic characteristics, sexual function was evaluated with a detailed 19-item questionnaire (The Female Sexual Function Index [FSFI]) assessing sexual desire, arousal, lubrication, orgasm, satisfaction, and pain during sexual intercourse. MAIN OUTCOME MEASURES: The FSFI scores were compared between the two groups, and risk factors that might cause sexual dysfunction were also investigated in the women with ESRD. Results. The mean FSFI total score was significantly lower in the ESRD group (15.9 +/- 10.4) than in the control group (22.2 +/- 6.8) (P = 0.001). The women with ESRD had also significantly lower mean score of sexual desire (P = 0.006), arousal (P = 0.001), lubrication (P = 0.001), orgasm (P = 0.001), satisfaction (P = 0.001), and pain (P = 0.024) than in the control group. To investigate risk factors for sexual dysfunction in the ESRD group, the women having hemodialysis, compared to the women having peritoneal dialysis, had a 5.23 times greater risk of developing sexual dysfunction (P = 0.001). CONCLUSIONS: This study shows that women with ESRD have higher risk of sexual dysfunction than healthy women. Thus, women with ESRD should be consulted for sexual dysfunction to improve the quality of life.

#2

Dori, I may well take a look at those books:) I work as a volunteer for the Outsiders Trust (UK based charity for those with disabilities) Thanks for posting.

J

#3

Hi Dori, arriving late to the discussion, but is there still a recording posted somewhere for Robin Siegal’s talk about Intimacy and Home Dialysis.? I’ve been getting more frequent requests for how to address this issue for younger patients.
Thank you,
Kathy

#4

Great question, Kathy! We are looking. Meanwhile, there is a Life@Home article on this site that you may want to check out for your patients here - https://www.homedialysis.org/life-at-home/articles/home-dialysis-and-sexuality, and, of course, our Kidney School module on Sexuality and Fertility has a wealth of information as well, here - https://kidneyschool.org/m11/, or here as a PDF in English - https://kidneyschool.org/pdfs/KSModule11.pdf or here in Spanish - https://kidneyschool.org/pdfs/KSModule11_SP.pdf.