[QUOTE=Dori Schatell;17032]Hi Bob,
The NKF says that there are 5 stages of CKD, based on the glomerular filtration rate (GFR). Stage 5 is kidney failure requiring dialysis or a transplant. Each year about 100,000+ people reach stage 5 CKD/kidney failure. The rest of the 26 million or so folks have an earlier stage of CKD (1-4) that doesn’t yet require dialysis or transplant.
There was a thread about recovery of kidney function, which can happen with acute (sudden onset–generally due to a toxin or blood loss) but NOT chronic kidney failure. If dialysis is no longer needed, it is stopped. If it is needed again, it starts again. I’m not aware of any legal issues related to this–although when a person had end-stage renal disease (ESRD) which is paid for by Medicare, it used to be that a doctor had to certify that the kidney failure was permanent. If I recall correctly, this is no longer required, but Beth would probably be able to cite chapter and verse of where this policy was and when it was changed. .
The Medical Education Institute also runs the Life Options program as well as Kidney School. Any website that speaks to ALL people on dialysis (not just folks doing HOME treatment) will always have more traffic simply because of the numbers–300,000+ vs. about 25,000, but Home Dialysis Central is the renal community’s premier home dialysis (PD & HD) resource.[/QUOTE]
I could not agree more in HDC is the best overall site for people looking for real Q & A on home dialysis. Do you still run the other sites?
So If I had stage 4 the Drs are no going to put me on meds that would help keep me healthy. I had two drs have different outlooks on this, one saying no meds before dialysis ,the other saying pre meds should have been started. Or if you have kidney disease ,stage 5 will follow 4 in short time. The thread I came across was on people stopping dialysis. My dialysis was due to trauma to my kidneys.At the time 4 renal drs had four outlooks. Since then I still go to bathroom 2 to 4 times a day. Also I had 2 outside drs question the wisdom of me on dialysis. I look to Beth posting on what happens if I want to stop ,not to die but to see how much function I have left( not much) but could I come off. Any legal issues with my center and me? My blood work had always been off for a # of yrs. That’s why the drs were back and forth on pre meds.
The story in Times (http://www.nytimes.com/2009/01/06/health/06seco.html?ref=health… short story) deals with cancer.I think it should apply to all life changing medical things. Be it cancer or heart ,etc. My new GP (1 1/2 yr) the first thing he wanted was a complete medical history on me. ( renal drs and team still have not done this)
When new GP looked at my history. lt let him know that I have a medical history going back to birth. And in it my Dr of 35 yes let him know that my level of understanding medical issues is far better than the avg. person. So my GP and I can talk on a higher level. My renal team still thinks I don’t understand issues. Since this (dialysis) the renal drs have pushed me to have my PTH glands taken out, even though we know with meds my PTh level are control. Take glands out isn’t the issue, it that one) meds can and do work. two) the drs they sent me too were just surgeons. I wanted someone who deals with the glands on a daily routine. ( after two yrs of looking found one so if they do have to come out I now have Dr I’m now understands and trust)
You know if this wasn’t me and was just reading this I would or might think the whole thing was out of a book.