Dr. Agar,
I put together the mortality rate for hemodialysis patients (death rate, unadjusted - usrds.org) for U.S. patients:
http://dialysisethics2.org/open_images/mortality.jpg
I’ve been looking for similar international data and don’t seem to be having much luck. Would you happen to know where I could at least get data for Australia? If you knew of data for Australia and other countries that would be really great!
Chris
P.S. Saw the thread about the book, it will be on my reading list!
Dear Plugger
Most Western countries run extensive (for the most part government funded) registries.
The following gives you a start into 4.
I am afraid I do not have the time in my practice at the moment to do more than give you a start. Each of the registries is extensive but, within the data contained therein, you should find what you need. It is all public knowledge. The Australian registry is the longest running and most year-on-year complete of them all. For all its strengths, the URSRD can also be patchy.
These references will give you a start into the world of registries … but, be warned … it can be heavy going.
ANZDATA – all and latest report
http://www.anzdata.org.au/v1/report_2011.html
UK – all and report
UK – old(ish) paper now (2008) but may give what you seek
Nephron Clin Pract. 2010;115 Suppl 1:c117-44
Epub 2010 Mar 31. <http://www.ncbi.nlm.nih.gov/pubmed/20413945#>
France
REIN Registry … Paper in KI which will give you a start into their registry data =
Kidney International (2011) 80, 970–977
doi:10.1038/ki.2011.233; published online 20 July 2011
Int Quot Dial Registry (IQDR) … Latest report =
Hemodial Int. 2011 Jan 14
doi: 10.1111/j.1542-4758.2010.00521.x. [Epub ahead of print] <http://www.ncbi.nlm.nih.gov/pubmed/21231997#>
Among other registry worth viewing are those from Finland, Italy, the Netherlands, Sweden and Germany.
ANZDATA is easy to find
Simply type ANZDATA into your browser
Choose the ANZDATA map (ANZOD is our donor organ registry)
Click Reports … go as far back as you want
Good luck
Thanks! You have done more than enough! I think I can take it from here.
Plugger …
Can you let me know - in due course - how the information I gave was received and if it made any difference.
