Just found this board and I like it alot. First of all I want to put you in my frame of mind about my disease and about dialysis…
WARNING!! IF YOU ARE SOMEONE NEW TO DIALYSIS AND HAVEN’T FORMED AN IMPRESSION ON IT YET! DO NOT READ THIS! I DON’T WANT TO TO FEEL BAD ABOUT IT BEFORE YOU EVEN START DOING IT!
In summer of '98, I was diagnosed with IgA Nephropathy and was told that I could have kidney failure anywhere from 30 years to 2 years. Back then they just said, get blood tests every month and will monitor it. So we do that and the years go on. I get married to my beautiful wife and and we have a daughter! Life is happy right? May of this year, I got really sick with pneumonia and somehow this aggravated my disease. So now the doc brings up dialysis and says that I need to have it right away. I went through the worst time realizing that I have kidney problems and had to be hooked to a machine! But I took comfort in my wife and family. Little did I realize that my wife had other plans. Right after I got out of the hospital in May I kind of adjusted to “this life” and even now still trying to adjust. My wife did not! She became a very withdrawn person and started working long hours because I was working shorter hours. Things got a little better for a time there with me getting the PD cath in. But my wife had enough! She left me! With nothing to my name and now I’m forced to live with my mother. In a way, IgA Nephropathy already ended my life, I have to live for my daughter now! I hate doing dialysis (hemo and PD), it makes me feel alone and trapped. But what am I going to do? I have already started talking to other doctors to deal.
Thanks for listening…(steps down off soapbox)