Oh dear god I hate this ridiculous machine. The design is horrible, the user interface is a joke, the manual was written by someone who apparently had never actually looked at the machine in person. I’ve been on every type of dialysis available since 1994, had three transplants, and now the latest is failing and I’ve had to go back on dialysis. My last home hemo machine was so much better than in center, that I chose to go directly back to home hemo. Only that machine is no longer available, so instead I was trained on the NxStage Purecrap system. DISCLAIMER: I help write technical manuals, and assembly procedures for a company that builds environmental and biological research instruments. Therefore when I read in the NxStage manual to press the “Go” button, I assumed there would be a button labeled “Go”. But of course not, that would make to much sense. Also, since I was previously familiar with home hemo, I assumed there would be a button I could press that would rinse me back in an emergency, not so. The machine isn’t even ambidextrious! Am I the only one with a LEFT arm AV fistula? And to travel with this monstrosity? Are you kidding me? Think of the hassle, lugging the thing across country while on your vacation (don’t forget the U-Haul just for the supplies unless you are staying in one place the whole time). Then take 3 hours of your day, every day of your vacation to dialize. How fun. I understand the desire to design and build a simple yet functional machine, but boy did they ever drop the ball on this one. I am calling the dialysis center tomorrow to have them come remove it from the premises. It was less hassle when I had to do in center treatments.
For those of you who’s only experience with home hemo is on the NxStage, I apologize for what you’ve had to deal with. There is much better technology out there. But right now, it has been shelved. Hopefully soon it will once again be put to good use. Because this thing is a freakin’ nightmare compared to what used to be.
The National Kidney Foundation of Nebraskas Patient of the Year, 2005