don’t you think that it is primarily for safety/law suit protection for the company, and secondarily for the safety of the users? Accidents and emergencies though rare, do happen. Therefore, the company really has no choice but to stipulate that the user have an experienced “helper” present.
As I said I am more than willing to sign any kind of waiver so, no, I don’t think it has to do with law suit protection. Accidents and emergencies happen true, people die even with helpers. There has never been a death (and yes I’ve searched and searched) with someone doing self dialysis, and there are quite a few.
As I’ve said many times before, when you have a healthy dialysis person, who doesn’t have problems and knows what to do if she did, I do not believe there is an increased risk of doing self dialysis. I mean really, those doing nocturnal have their helper sleep through dialysis often in another room, those doing short daily with helpers seldom have their helpers in the room while doing dialysis. The only real risk I see is a heart attack or stroke happening during dialysis, and to be honest these things could happen off dialysis I don’t see dialysis increasing the risk and if you are alone most of the time then why insist on someone being there for dialysis.
I am not advocating self home dialysis for patients who are not generally in good health and well trained, or anyone who has problems on dialysis, although generally I think people have less problems on home dialysis simply because you are in control of your treatment and and immediately take steps if you feel your b/p dropping or cramping begins.
So NO, I do not think they have to insist a helper be available. Personally I think diabetes is a very dangerous disease, so maybe no one should be allowed to treat their diabetes unless they have a helper since low and high blood sugars are so dangerous. Of course no manufacturer of glucose testing machines or pumps or anything has ever insisted on this, so why do the dialysis machine manufacturers have a right to insist on this, it should be up to the clinic, doctor and patient, I do not believe the manufacturers legally have a right to do this, but don’t feel like challenging it in court right now.
Cathy
self home hemo 9/04, never a problem
PKD
looking to switch to NxStage but must inconvience my sister in order to do so