Welcome, and a few thoughts, Guest. With PD, your energy levels should be pretty constant. If they’re not, I have to wonder:
– What is your hemoglobin level? Are you anemic, and if so, is your treatment getting you into the target range? Anemia causes fatigue.
– How’s your sleep been? Are you using a cycler? Is it waking you up?
– Are you used to physical activity, and if so, have you been doing any? It may sound backward, but exercise gives you MORE energy.
Think VERY seriously before you give up a job. Social Security Disability tends to only pay about 1/3 of what you earn through work, and once you stop, it can be very hard to go back. If your plan is a transplant, you’ll also need a way to pay for the immunosuppressant drugs once you’re 3 years out, if you are under 65 and don’t have some reason other than kidney failure to be disabled. So, with no recent work history or plan to pay for your drugs, many programs will not list you. Plus, work has benefits as a social outlet, self-esteem, and keeping a health plan if you have one. You can learn more about working with kidney failure in our free booklet, which you can download here: http://www.lifeoptions.org/catalog/pdfs/booklets/employment.pdf.
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