What a timely topic. I have been fighting calcium/phosphorus and pth for some months now. Although I eat essentially no calcium I fight high calcium. So for months I was off calcitriol. I started Sensipar which successfully lowered my calcium enough but my PTH continued to climb, then due to a muscle weakness problem they stopped everything and my PTH is now over 2000 (was 1700 on the calcitriol and sensipar). I just restarted Sensipar (60mg) and calcitrio 5x a week. They will repeat my PTH next week and calcium.
I know my diet isn’t causing the high calcium, I know it must be the PTH, but my neph, as usual, doesn’t think there is really a problem. For months I have been complaining about exhaustion, rapid heart rate (again), weakness quickly when trying to do anything, horrible stomach acid pains that max strength pepcid a/c doesn’t even touch, recurrance of awful rls, back aches and just general malaise. I looked up symptoms of hyperparathyroidism and this fits, however, my neph says that unless I experience actual bone pain even when resting that it isn’t my pth.
I also have a reasonably high cortisol level (am of 39) which my doctor claims is normal, yet according to research anything above 23 "warrants further study). Cushings syndrome also fits my symptoms.
I have to be honest that I am getting tired of daily dialysis and still feeling like crap and having to carefully watch my diet. My unit is mystified and I am so frustrated.
So those of you with hyperparathroids, did your neph deal with this or did they send you to an endocrinologist. I am thinking of asking firmly for a referral, which will make my neph angry, but…
home hemo 9/04