Well, that time has come. They are coming tomorrow to take my dialysis system away. It’s going to feel funny not having it around anymore, but I will sure be glad for the free space. Over the past few months, before the transplant, after 4 years on dialysis, I was really starting to think this day would never come for me.
It’s all going very well so far. I’m down to weekly transplant clinic visits now. Those daily ones the first few weeks were murder. That included even weekends. Down to only 12.5 mg of prednisone already, on the way to 5 mg daily. Down to only 3 mg of tacrolimus (Prograf). No BP meds at all.
The only downside to all this, should it ever become a problem, is that I would not be able to automatically get back on home hemo. There’s a waiting list. But then, I have to take inspiration from the guy ahead of me at the tx clinic this morning who was booking his next follow up for a year from now - and he has had the same transplanted kidney for 27 years!
There’s not much relevance to my hanging around here that much anymore. I feel like kind of an outsider now. I’ve greatly enjoyed this forum and all the people on it - yes, even Bill with whom I could never see eye to eye on some things like what short daily actually is
Things change, and it’s time to move on and forget about dialysis for as long as possible, before the moderators have to tell me this isn’t a transplant forum. Best of luck to everyone.
Foundation for IgA Nephropathy
P.S. I’m loathe to add to my daily load of spam by posting an email address here, but if you know where to reach me, please don’t hesitate. And Beachy, don’t let those NxStage boosters get you down
Oh, if we have emailed in the past, I lost all my emails and addressbook just before the transplant in August when my computer crashed irrevocably. Everything is gone. Too busy with home hemo to have done proper backups, sad to say. Some excuse, eh!