I’m not going to rate these as most have a real value and I don’t want one if it means not the whole package.
The best biochemistry you could get If you mean the drugs in combo with dialysis time, then 3 days a week would be more than needed. As long as the consumer did not go out of their way to screw things up.If a person cares that much to take it home, then I take it that they would in time get the right combo of drugs and tx time.
True, easy, light-weight machine and consumable portability
Moveability of machine/equipment, room to room, place to place
Speed and simplicity to set up, get on and get off dialysis For now the nxstage with the pureflow, unless someone can correct me is all of these in one, with the exception of getting on and off. My idea of on and off will be better when someone comes up a combo of fistula /catheter.(I’m use a fistula , but would love a mini cath that feed into a fistula that made getting on and off as simple as a cath. the fistula has the bleed time after coming off where as the cath is clamp and go. )
Overnight, long, during sleep dialysis
Short, frequent, daytime dialysis
The option of being able to choose a mixed regime … long, short, awake, asleep … all In this area , I do have the option of doing what best fits the time I have. I do nocturnal and have really come to find it has helped a great deal with #'s, but most important to me is time. I get to do two things at once and have my work or leisure time to me. But if something comes up & I need to do something, I might change my time since I can. The bottom line is getting the tx.
Efficient and effective single needle, not two needle dialysis - I can’t comment on this since this has never been mentioned since I came into dialysis and I can’t recall if this topic was talked about on this board?
Self dialysis with self control, independent of a carer - I think this up to the person who is on dialysis.
Dialysis by and dependence on a trained carer at home - Are you talking about “trained carer at home” being someone outside the person’s family? (family being parent, spouse/ lover, grown child for parent)
Home visits by your renal team. As to home visits by your renal team, I would have the same problem I have now if this means the team came to my house once a month.( I really don’t see it , due to cost, remember Dr’s stopped making house calls yrs. ago) For the life of me I do not understand why in world I need to see the team once a month to have three people talk to me about my #'s. The only reason I have found is $$$., Don’t get me wrong if a person on dialysis wants to see there team that often then fine. But the cost should be out of their pocket. If a person needs to see the team that often then something might be wrong and maybe the team needs to stop at the house to see what is going on, that the person needs to see the team that often. Also I understand that there are people who have other problems that the team or at least a Dr. needs to see a person that often.
Reimbursement for all costs of home care
Better, more available, real-time Q&A with accredited dialysis docs/nurses on the net On cost, we have to pay something. If we could afford all the cost that goes into medical the system might not be so backwards. But since we only pay a % of the cost we really don’t demand the changes that are needed, since the cost is spread out to everyone. If we had to pay all the cost up front and only got a % back people would demand more real honest and upfront tx and answers. This also answers the real time Q and A on the net. If we knew that we were getting the truth from our Drs., nurse , etc, there would be no need to get real time Q and A from people who we had no real idea of what there motives are, if we are not getting what we need from our team , why would we trust someone who we don’t know and who doesn’t know us.
Respite and/or holiday dialysis availability I don’t understand. Do you mean being able to go a week without dialysis at all, like taking a holiday where we could forget machine etc? Only to to dream
If you have one other view/preference/demand … what would it be? That someday the know how to clone or create a generic organ that was had no need for tons of drugs and such. That if a person liver/ kidney etc were going bad they could get the old one taken out and a new put in, I even be happy with and artificial inplanted kindey.
As to why people may not be posting could that the some topic have been talked on, and some there is is no answer to , some are just going over the same thing, ($$$) plus we need more people to get into home hemo