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Discussions for Patients, Family, and Friends HD For Patients
41

Hi Bill
I am sure John will answer when he gets a chance.

Meanwhile what I know is -

  1. Home dialysis uptake varies between states of Australia. My state (NSW) has around 16% performing home hemo. Other states are as low as 2%. Factors for this would be distance from base hospital, specialists and dialysis education, indigenous population

2)Cost to the state. Home hemo is encouraged,if not pushed in some cases, because it is much cheaper for the public purse to have us dialyse at home than in centre ,(building, staffing, equpment etc)

3)The Aussie has a history of independence of spirit due to isolation. We don’t like having to rely on others. If we can do it ourselves, we will.

  1. Most costs to us are covered by our government whether it is at home or in centre, so if you are still in the work force, doing it at home means you can fit dialysis in around your work.

Cheers

42

Bill

These are the numbers from the 2006 ANZDATA survey to Dec 31st 2006 released on 16th August 2007

Australia – Haemodialysis @ end 2006

In-centre HD 2343 (32.7% of all HD)
Satellite HD 3942 (55.1% of all HD)
Home HD 876 (12.2% of all HD)
Total 7160

New Zealand – Haemodialysis @ end 2006

In-centre HD 552 (45.7% of all HD)
Satellite HD 336 (27.8% of all HD)
Home HD 319 (26.4% of all HD)
Total 1207

Combined ANZ – Haemodialysis @ end 2006

In-centre HD 2895 (34.6% of all HD)
Satellite HD 4278 (51.1% of all HD)
Home HD 1195 (14.3% of all HD)
Total 8367

Now … I don’t have the PD figures at hand as I type this but at December 31st 2005, the PD numbers were as follows …. And there has been proportionately very little change in the past 12/12 except in the mix of APD and CAPD with APD on the rise and CAPD on the fall within the PD numbers as a whole.

Australia – Peritoneal Dialysis @ end 2005

CAPD 1027 (56.7% of all PD)
APD 784 (43.3% of all PD
Total PD 1811

New Zealand – Peritoneal Dialysis @ end 2005

CAPD 540 (75% of all PD)
APD 180 (25% of all PD)
Total PD 720

Combined ANZ – Peritoneal Dialysis @ end 2005

CAPD 1567 (61.9% of all PD)
APD 964 (38.1% of all PD)
Total PD 2531

Now this is naughty but gives a ball-park figure (please note that I am using 2006 HD but 2005 PD data) but the numbers haven’t changed so much to make this more than a wee bit out …

Combined ANZ data

In-centre HD 2895 (26.6% of all D)
Satellite HD 4278 (39.3% of all D)
Home HD 1195 (10.9% of all D)
CAPD 1567 (14.3% of all D)
APD 964 (8.8% of all D)
Total 10899

Feel free to bookmark and repeatedly visit and distill the ANZ data from the ANZDATA website @ http://www.anzdata.org.au/

You don’t need to ‘join’ – the Aust and NZ information is all freely available there.

To me, the most interesting (and encouraging) data is in the frequency and duration data within HD … but that’s for another time

John

43

Those are pretty amazing stats for HHD. I did an analysis of my congressional district and found I was the only HHD patient out of 700 dialysis patients. I’m also pleasantly surprised by what’s happenning at NKC in Seattle. It obviously shows what can happen when HHD is proactively advocated.

44

How does in-centre differ from Satellite?

45

Jane;

Sorry to hear your that you have had so much trouble finding a good Neph/team. It’s like a marrage you take the good with the bad and make the best of what you have… Which you have done and hope in the near future you find your perfect match. Don’t get me wrong; I too check things out on the WEB and discuss new information that may make it better for my partner with her Neph/team. Not always do they agree or have heard of such procedures/processes but I feel that I have planted a seed (Idea) that may be fruitful in the future.

Take care

HemoHelper

[QUOTE=Jane;14913][QUOTE=HemoHelper;14856]

In answer to this, in each city I have lived in, because I have relocated several times work-related, I went and checked out the dialysis units. I always based my choice of a new unit on the appearance of the unit. The reason is, in each situation, there was only one half decent looking unit while all the rest were horrible. None of the cities had more than a few units to choose from and some had monopolies. So then, what does it say that a unit is half -decent looking? It says that the care will probably be half-decent- what you see is what you get. All the units I have been in have been mediocre. There are always one or two staff who give 100%, but everyone, patients and staff alike, walk on eggshells and true care is non-existant. There is no such thing as true care in units like this.

Now one thing I will give each neph I have had. Although none of them have been up to date, if I did all the leg-work and brought current info to them, they were willing to allow me to take the best direction for my care re medications and the like. I just can never get over how I have been put in this role over and over, because each neph has had no interest in being up to date. They didn’t even know what was going on with home txs. Yet when I told them my desire to go into home txs, they all piped up that if they were on dialysis that’s what they would do!

So, it has never been that I don’t want to find a better neph/unit, but that nothing better has been available to me. Therefor, I have had to search the net to fill in the blanks. You say that the net is dangerous because there is no way to check out if a person has valid credentials. I really don’t care about the credentials in the sense that I have been very let down by one neph after another who does have credentials. Don’t get me wrong- as I stated previously, I don’t blindly believe everything I read on the net, but neither do I blindly believe everything my neph or staff says as they have been wrong many times. I take each statement and thoroughly check it out. I have even contacted those on the net to see what their credentials are. If they are a bonifide proressional they are known by others and check out. But the main thing I look for no matter who I am dealing with, patients or professionals, are facts that show that what they are saying is accurate. And in so doing, I manage to get to the right conclusions for my care.

I am so glad for you and your partner that you’ve been fortunate to have care that you are happy with. I haven’t, unfortunately, and many other patients are in the same boat. That is why I say that if qualified professionals provided dialysis education to patients on this site, I would wholeheartedly avail myself of the help and support. Because I would say the thing that has held me back the most from flourishing as a patient, a home patient now, has been the mediocre care/education by nephs and staff. Next to the machine and equipment, I feel that accurate dialysis education and respectful care is the most important
components which allow one to succeed on dialysis.[/QUOTE]

46

Bill,

I believe satellites refer to self-service centers that are minimally staffed. In them, patients perform dialysis on themselves (ala home), but with a machine permanently stationed in the center. Generally, the facility will have a nurse keeping an eye on everyone - but not for the purpose of running therapies.

This provides savings on staff, and allows multiple patients to use the same device. For patients, it allows self-dialysis in instances where a home setup may not be feasible (or not operable), or as a transition step between in-center and HHD (the nurse provides security and troubleshooting).

This is used throughout the world, but not so much in the US.

Ray