I posted a notice in August that my OEM clinic (Orion Medical Enterprises in North Miami Beach, Fla.) had sent me a letter stating that my NxStage supplies would be cutoff due to a billing dispute with my Medicare HMO (CarePlus of Coral Gables, Fla., owned by Humana). On Oct. 20, my supplies were cutoff. Orion went to extreme measures to force me out of the clinic, including having social workers from in-center clinics call me, emails, faxes, phone calls, and certified mail.
After two months of heart-attack inducing trauma, on Oct. 23 CarePlus relented and extended my treatments until Jan. 31, 2007. There is a possibility that my treatments may be cut from six to five weekly. CarePlus said the nephrologist had an impact, but it probably was the CMS grievance and pressure from my U.S. Congressman. CarePlus has had my nef's 'script on this for years. I was dying the clinic with thrice weekly treatments. Daily dialysis saved my life.
I was supposed to dialyze four times a week with a Baby K through Kidney Care of Fort Lauderdale, Fla., but the deal fell through. Kidney Care, also an OEM, said it did not meet state qualifications to train my husband, who assists with my dialysis. I don't know if that's true or not. CarePlus obviously won't pay for staff-assisted home HD.
It is my belief that I must leave Orion by Jan. 31, although it is possible CarePlus could extend my treatments at 3-month intervals. I don't trust Orion after they threatened me.
If anyone knows how a patient can dialyze at home with a Baby K or other modality four times a week in South Florida, please let me know. I am not a candidate for noctural home HD. I have PKD and can't do PD. I will check this site daily and forward my email address and phone number to anyone who can help. Thank you.