We are in a situation I am not happy with.
My Father has been on hemodialysis for 2 years. As of late he has been rapidly declining.
First, several weeks ago, he injured his knee while working on a pickup. (yes he’s in his 70’s !). Went to
the doctor, and did a series of x-rays. Nothing showed up being broken or any chips, just "degeneration and
arthritis. Was given pain pills. Now he finds it difficult to walk, becouse it hurts when weight is applied.
He now must use a walker to “steady” himself, when he was using nothing before.
Additionally his is looking weight and mussle mass. I have voiced concern over this, but told it is only down a
kilo, and he should continue to eat more protein.
To illistrate had bad it has become, last week, when he got out of the dialysis unit, he started to leak at
his access, so he walked back in and the nurse saw what was wrong, so she grabbed the arm and applied pressure.
But, she was almost able to wrap her had around his upper arm where the access is !!
Now, the last piece of the puzzle, he has ITP. He bleeds from his access after dialysis, and need to
wait at least 1/2 hour after the needles are pulled. In addition, he has black spots all over his
body. His platelets were in the 70’s about a year ago, now we are in the 30’s, 40’s and 50’s…while
they should be 150 plus !! When I started to strongly voice my concerns on these labs, I was
told “we are watching them”.
So what to do ?
It is clear there must be a change.
He is becomming more and more weaker all the time. Not long ago he had energy, now he sleeps most of
It appears the doctors don’t want to do anything along with the “associated services”.
But, we are in a rural area, and the next nephrologyist is at least 150 miles away, and the same for a different
so what to do?